There are three working groups, one for each work stream that will meet to work on the technical details of the workstream’s implementation and a third group to ensure user engagement with the project and outcomes.
PROMs PREMs Workstream Working Group
Dr Peter Hall
Dr Peter Hall is an academic Medical Oncologist with a research interest in and Health Economics and Health Technology Assessment in Cancer.
The focus of his research is on the development of improved methods for efficient research design, cost-effectiveness analysis and the measurement of clinical and socioeconomic outcomes using data obtained from research and routinely collected within the NHS.
He is Chief Investigator, clinical Co-Investigator or lead Health Economist on a number of clinical trials and methodological research projects. He leads the Health Economics Group within the University of Edinburgh Clinical Trials Unit. He is a Visiting Associate Professor of Health Economics at the Academic Unit of Health Economics, University of Leeds where he completed a PhD in health economic modelling. He is a NICE Appraisal Committee member and advises the Innovative Healthcare Delivery Programme Scotland at the Farr Institute. He treats patients with breast cancer at the Edinburgh Cancer Centre.
Professor Brian McKinstry
Professor McKinstry is a general practitioner and Professor of Primary Care eHealth. He leads the Telescot research programme, as well as the Edinburgh Health Services Research Unit and SHARE (the Scottish Health Research Register).
Karen Seditas joined the Innovative Healthcare Delivery Programme (IHDP) as Programme Manager in September 2016, and is seconded from Cancer Research UK (CRUK). Karen’s role with IHDP includes managing the development and delivery of a Scottish Cancer Intelligence Framework.
Karen has over fifteen years’ experience as a senior manager within the third and public sectors, latterly with a focus on innovating in Knowledge Exchange for social policy and practice. Previously, Karen worked with the Centre for Research on Families and Relationships at the University of Edinburgh where she devised and led collaborations to develop innovative ways of enabling and supporting evidence-informed practice and policy. Through partnership projects with third and public sector organisations, and with What Works Scotland, she led the development of the Evidence Bank model to support taking evidence into action.
Professor Mary Wells
Mary is the Professor of Cancer Nursing Research and Practice at NMAHP RU, University of Stirling and is a cancer nurse with a clinical academic background in health services research within oncology. Her research is mainly focussed on the supportive care of people with cancer and in particular the needs, experiences and outcomes of people who have completed treatment. Mary works closely with a number of cancer charities with a major interest in improving experiences, outcomes and cancer care practice. She was a member of the Executive Board of the European Oncology Nursing Society (EONS) from 2009 - 2015(and Secretary from 2011-2015) and she is currentlyco-chair of theEONS Research Working Group.Since 2009 she has been a Specialist Advisor to the leading cancer charity Macmillan Cancer Support and the Consequences of Cancer Treatment Collaborative and she is on the Clinical Advisory Board of the Throat Cancer Foundation In 2016 Mary was appointed as a Trustee of HealthTalk (previously DiPeX) www.healthtalk.org She has been a member of the NCRI Psychosocial Oncology and Survivorship Clinical Studies Group (CSG) since 2013 and has led the Interventions sub-group since 2015. She is also a member of the survivorship sub-group of the Head & Neck CSG.
Cancer Data Workstream Working Group
Dr Hilary Dobson, OBE
In February 2017, Hilary Dobson joined the Innovative Health Delivery Team (IHDP) as deputy to its Director, Professor Aileen Keel CBE. Prior to this appointment, from 1988 until December 2016, as Clinical Director, she set up and lead the West of Scotland Breast Screening Service - one of the largest UK Screening centres, responsible for the administration of the screening of 80,000 women annually (48% of the eligible Scottish population). Additionally, Hilary was the radiological lead of NHD Greater Glasgow and Clyde symptomatic breast services; this combined screening and symptomatic Service yields in excess of 1,000 new breast cancer diagnoses annually.
In Scotland, Hilary is Medical Advisor for Quality Assurance for the Scottish Breast Screening Programme and is a member of the Scottish Standing Screening Committee. Since 2015, she sits as a cancer expert on the UK National Screening Committee.
From 2011 to 2016, Hilary was the Lead Cancer Clinician for the West of Scotland Cancer Clinical Network (WoSCAN) and in this post she contributed to the Scottish programmes on Detect Cancer Early (DCE) and Transforming Care after Treatment (TCAT). She chairs the National Cancer Quality Steering Group (NCQSG) whose focus has been the development and implementation of 18 tumour-specific and 3 generic Quality Performance Indicators (QPIs). She remains a key influencer in both the development and delivery of a governance system to deliver continuous quality improvement in cancer care.
From April 2017, Hilary has assumed the role of Co-Chair of the Managed Service Network for Children and Young People with cancer (MSN CYPC).
In the Queen's birthday honours list of June 2014, Dr Dobson was awarded the OBE, in recognition of her contribution to cancer services in Scotland.
Dr Stephen Pavis
Dr Stephen Pavis joined the Information Services Division (ISD) of National Services Scotland, NHS in 2003 and holds the post of Head of Services. He is currently responsible for the provision of the National Safe Haven and the joint services offered under the Scottish Informatics and Linkage Collaboration. He heads the eData Research and Innovation Service and is a co-investigator on the ESRC Administrative Data Research Centre grant. Stephen has recently chaired the ESRC’s Information Assurance Working Group to create equivalency in privacy protection across the UK’s Administrative Data Research Network. Previous roles within ISD have included Programme Principal for the Scottish Health Informatics Programme, Long Term Conditions, Social Care, and Drug and Alcohol Misuse. Before joining ISD, Stephen was Head of Department for Sociology at Queen Margaret University, Edinburgh. Prior to this he was employed as a Research Fellow at the University of Edinburgh's Research Unit in Health and Behavioural Change, specialising in qualitative research methods. Whilst at Edinburgh University he held several grants relating to labour market change and health, and young people's health related behaviours. Stephen holds a PhD in Social Policy from the University of Edinburgh
Professor Dave Robertson
User Engagement Working Group
Gregory is the Our Voice Co-ordinator at the Health and Social Care Alliance Scotland (ALLIANCE) and is working with stakeholders across health and social care to improve opportunities for people with long term conditions to have their voice heard in the design and delivery of services. As the coordinator of a national engagement project, he has had the opportunity to work with a wide variety of third sector organisations and representative groups. Current work involves supporting a national network of public IJB representatives to have a stronger voice within Integration Authorities and working with the Third Sector to facilitate collaboration around engagement and involvement activities.